Catalogue

UK Data Service data catalogue record for:

National Awareness and Early Diagnosis Initiative: Cancer Awareness Measure, 2008

Title details

SN: 6297
Title: National Awareness and Early Diagnosis Initiative: Cancer Awareness Measure, 2008
Alternative title: NAEDI-CAM
Persistent identifier: 10.5255/UKDA-SN-6297-1
Series: National Awareness and Early Diagnosis Initiative: Cancer Awareness Measures [National Awareness and Early Diagnosis Initiative: Cancer Awareness Measures]
Depositor: Simon, A., University College London. Department of Epidemiology and Public Health. Cancer Research UK Health Behaviour Research Centre
Principal investigator(s): Wardle, J., University College London. Department of Epidemiology and Public Health. Cancer Research UK Health Behaviour Research Centre
Ramirez, A., King's College London. Institute of Psychiatry. Cancer Research UK Promoting Early Presentation Group
Austoker, J., University of Oxford. Cancer Epidemiology Unit. Cancer Research UK Primary Care Education Research Group
MacLeod, U., University of Glasgow. Division of Community Based Sciences. General Practice and Primary Care
Robb, K., University College London. Department of Epidemiology and Public Health. Cancer Research UK Health Behaviour Research Centre
Data collector(s): Office for National Statistics
Ethnibus
Sponsor(s): Cancer Research UK
Department of Health
Other acknowledgements: Cancer Research UK funded the development of the Cancer Awareness Measure (CAM). The National Cancer Action Team, led by Kathy Elliott, funded the regional use of the CAM.

Citation

The citation for this study is:

Wardle, J., Ramirez, A., Austoker, J., MacLeod, U., Robb, K. (2009). National Awareness and Early Diagnosis Initiative: Cancer Awareness Measure, 2008. [data collection]. UK Data Service. SN: 6297, http://doi.org/10.5255/UKDA-SN-6297-1

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Subject Categories

Health services and medical care - Health
Social attitudes and behaviour - Society and culture
Specific diseases and medical conditions - Health

Abstract

Abstract copyright UK Data Service and data collection copyright owner.

Patients with cancer in the UK tend to present with more advanced disease and have poorer survival rates than their European counterparts. One of the work streams set out in the National Awareness and Early Diagnosis Initiative (NAEDI), which was established under the Department of Health's Cancer Reform Strategy for improving cancer outcomes, has focused on developing a validated standardised measure for the general population, comprising a set of questions designed to reliably assess cancer awareness. The purpose of the Cancer Awareness Measure (CAM) is to facilitate accurate and sensitive surveillance of public awareness of cancer over time, identify information needs, and monitor the impact of campaigns promoting cancer awareness and early presentation.

Initial data collection using the CAM has taken the form of two surveys, from which datasets are available through the UKDA: a survey of the general British population undertaken as part of the Office for National Statistics (ONS) Opinions Survey (formerly the ONS Omnibus Survey), and a survey of the six largest ethnic minority groups in England (Indian, Pakistani, Bangladeshi, Caribbean, African and Chinese) undertaken by Ethnibus. These surveys were carried out in 2008 and provide a baseline against which to evaluate policy initiatives designed to improve awareness. It is expected that the surveys will be repeated in 2012. Also planned are a series of regional initiatives in the UK, and surveys involving specific types of cancer.

Further information about the CAM may be found on the Cancer Research UK Cancer Awareness Measures (CAMs) web page.
Main Topics:
The CAM questionnaire addressed the following topics:
  • public awareness of cancer symptoms
  • public knowledge of cancer risk factors
  • reasons for patient delay before contacting doctor
  • public knowledge of common cancer types in men and women
  • public awareness of cancer screening programmes
  • demographic variables

Coverage, universe, methodology

Dates of fieldwork: ONS Opinions Survey: September - October 2008;
Ethnibus survey: October - November 2008
Country: England | Great Britain
Spatial units: Government Office Regions
Observation units: Individuals
Kind of data: Numeric data
Individual (micro) level
Universe: National
ONS Opinions Survey: Adults (16 or over) living in Great Britain in 2008;
Ethnibus survey: Indian, Pakistani, Bangaldeshi, Caribbean, African and Chinese adults (18 or over) living in England in 2008
Time dimensions: Cross-sectional (one-time) study
Sampling procedures: ONS Opinions Survey: One-stage stratified or systemic random sample;
Ethnibus survey: Quota sample
Number of units: ONS Opinions Survey: 2,208 individuals;
Ethnibus survey: 1,500 individuals
Method of data collection: Face-to-face interview
Weighting: ONS Opinions Survey: Weighting variable in data;
Ethnibus survey: No weighting used

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Administrative and access information

Date of release:
First edition: 19 October 2009
Copyright: Copyright J. Wardle, A. Ramirez, J. Austoker, U. MacLeod and K. Robb
Access conditions: The depositor has specified that registration is required and standard conditions of use apply. The depositor may be informed about usage. See terms and conditions of access for further information.
Availability: UK Data Service
Contact: Get in touch

Documentation

Title File Name Size (KB)
Guidance and instructions for users of Cancer Research UK CAM survey tool 6297userguide.pdf 1315
Study information and citation UKDA_Study_6297_Information.htm 7
READ File read6297.htm 10
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Related studies:

  National Awareness and Early Diagnosis Initiative: Cancer Awareness Measure, North East London, 2009-2010 (SN 6537)
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  National Awareness and Early Diagnosis Initiative: Cervical Cancer Awareness Measure Benchmarking Survey, 2009 (SN 6645)
  National Awareness and Early Diagnosis Initiative: Cancer Awareness Measure, Barnsley, Bassetlaw, Doncaster and Sheffield, 2008 (SN 6648)
  National Awareness And Early Diagnosis Initiative: Cancer Awareness Measure, Arden Cancer Network, 2009 (SN 6678)
  National Awareness and Early Diagnosis Initiative: Cancer Awareness Measure, Kent and Medway, 2010 (SN 6680)
  National Awareness And Early Diagnosis Initiative: Cancer Awareness Measure, Anglia Cancer Network, 2009-2010 (SN 6688)
  National Awareness and Early Diagnosis Initiative: Cancer Awareness Measure, NHS North of Tyne, 2010 (SN 6783)
  National Awareness and Early Diagnosis Initiative: Cancer Awareness Measure, NHS Tees, 2010 (SN 6784)
  National Awareness and Early Diagnosis Initiative: Cancer Awareness Measure, North London Cancer Network, 2010 (SN 6803)
  National Awareness and Early Diagnosis Initiative: Cancer Awareness Measure, Brighton and Hove, 2010 (SN 6955)
  ONS Opinions Survey, Well-Being Module, April 2011: Unrestricted Access Teaching Dataset (SN 7146)

Related case studies:

Cancer awareness among frontline staff

Publications

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By principal investigator(s):

Resulting from secondary analysis:
Cook, N., Hart, A., Nuttall, K., Simpson, K., Turnill, N., Grant-Pearce, C., Damms, P., Allen, V., Slade, K. and Dey, P. (2011) 'A telephone survey of cancer awareness among frontline staff: informing training needs', Br J Cancer, 105(3), pp.140-5. doi: 10.1038/bjc.2011.258. Epub 2011 Jul 12.
Robb, K.A., et al. (2009) 'Public awareness of cancer in Britain: a population-based survey of adults' [Electronic version], British Journal of Cancer, 101(Suppl. 2): pp.S18-S23.

Stubbings, S., et al. (2009) 'Development of a measurement tool to assess public awareness of cancer' [Electronic version], British Journal of Cancer, 101(Suppl. 2), pp.S13-S17.

Waller, J., et al. (2009) 'Awareness of cancer symptoms and anticipated help-seeking among ethnic minority groups in England' [Electronic version], British Journal of Cancer, 101 (Suppl. 2), pp.S24-S30.

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