Catalogue

UK Data Service data catalogue record for:

Family Practices during Life-Threatening Illness: Exploring the Everyday, 2007-2008

Title details

SN: 7389
Title: Family Practices during Life-Threatening Illness: Exploring the Everyday, 2007-2008
Persistent identifier: 10.5255/UKDA-SN-7389-1
Depositor: Ellis, J., University of Sheffield. Department of Sociological Studies
Principal investigator(s): Ellis, J., University of Sheffield. Department of Sociological Studies
Sponsor(s): Economic and Social Research Council
Grant number: PTA-030-2005-00154

Citation

The citation for this study is:

Ellis, J. (2013). Family Practices during Life-Threatening Illness: Exploring the Everyday, 2007-2008. [data collection]. UK Data Service. SN: 7389, http://doi.org/10.5255/UKDA-SN-7389-1

Select the text above to add data citation in your outputs.

Select citation format: 
XML citation formats:  CSL  EndNote

Subject Categories

Family life and marriage - Social stratification and groupings
Health services and medical care - Health

Abstract

Abstract copyright UK Data Service and data collection copyright owner.

This is a qualitative data collection. These data were collected as part of a PhD project which explored the experiences of individuals living in a family where a member was dying or had a life-threatening illness. This was an ethnographic study which combined informal, in-depth interviews with nine families and participant observation on a hospice ward. Participant observations and the interviews from one family have not been archived due to consent restrictions; therefore the collection comprises data from eight families. Broadly the research aims were:
  • to explore how everyday family life is pursued when someone in the family has a life-threatening or terminal illness
  • to ask what families are doing at this time
  • to examine how relationships, family practices, familial identities and everyday family lives are experienced - particularly how they are sustained and/or changed when families encounter illness, dying and death
  • to also consider how family lives are experienced in a less every day and familiar context, by asking what might be significant about a hospice inpatient ward as a setting for family life during the illness process and especially nearing the end-of-life
These data are under embargo until October 31st 2014 at the request of the depositor. After that, the data will be available only with the express permission of the depositor.

Main Topics:
The data collection deposited includes 37 in-depth interviews with members from eight different families. The consistent themes covered in the interviews include:
  • facing death
  • living with life-threatening illness
  • everyday routines
  • family life and relationships

Coverage, universe, methodology

Dates of fieldwork: September 2007 - September 2008
Country: England
Geography: North of England
Spatial units: No spatial unit
Observation units: Individuals
Families/households
Kind of data: Textual data
Individual (micro) level
Universe: Subnational
Patients attending a hospice day care service, and their family members, in the north of England, 2007-2008.
Time dimensions: Cross-sectional (one-time) study
For some families and family members, repeat interviews over the one year time period were conducted.
Sampling procedures: Purposive selection/case studies
Number of units: 37 interview transcripts
Method of data collection: Face-to-face interview
Weighting: Not applicable

Thesaurus search on keywords

Administrative and access information

Date of release:
First edition: 14 November 2013
Copyright: Ellis, J. and University of Sheffield
Access conditions: The depositor has specified that this dataset is currently held for archival purposes only and is unavailable for download or order.
Please note: These data are under embargo until October 31st 2014 at the request of the depositor. After that, the data will be available only with the express permission of the depositor.
Availability: UK Data Service
Contact: Get in touch

Documentation

Title File Name Size (KB)
Data List 7389_ulist.xls 45
Consent Forms 7389_consent_forms.pdf 220
Details of Methodology 7389_details_of_methodology.pdf 176
Stylistic Notes for Transcripts 7389_stylistic_notes_for_transcripts.pdf 194
Interview Families Contextual Information 7389_the_interview_families_contextual_info.pdf 248
Topic Guides 7389_topic_guides.pdf 287
Data List 7389_ulist.pdf 88
Study information and citation UKDA_Study_7389_Information.htm 17
READ File read7389.htm 3

Publications

View publications... Hide publications...

By principal investigator(s):
Ellis, J. (2013) 'Thinking beyond rupture: continuity and relationality in everyday illness and dying experience', Mortality, 18(3), pp.251-269. Retrieved 21 November 2013 from http://www.tandfonline.com/doi/abs/10.1080/13576275.2013.819490

Resulting from secondary analysis:

Syntax/Code

No previously uploaded files

  (login required)

Upload syntax/code file


7389
Family Practices during Life-Threatening Illness: Exploring the Everyday, 2007-2008

I agree to the terms and conditions *

Confirm new syntax/code file version


A previous version of syntax file "" has already been uploaded and approved.

If you continue with this upload, the previous version of the syntax file will be overwritten with this new version.

This new version of the syntax file will be subject to the UK Data Service approval process before it becomes available for download.

Do you want to continue?

    


Back to top